A wide range of people took part in the research behind this resource. The team brought patient representatives together with researchers specialising in the internet and healthcare, patient experiences, science and technology and healthcare organisations.
The project was led by the University of Oxford and funded by the National Institute for Health Research Health Services and Delivery Research programme (14/04/48). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
John Powell, Associate Professor, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Anya de Iongh, Patient Leader and Self-management Coach
Fadhila Mazanderani, Chancellor’s Fellow in Science, Technology and Innovation Studies, University of Edinburgh
Helen Atherton, Assistant Professor, Unit of Academic Primary Care, Warwick Medical School
Louise Locock, Professor of Health Services Research, Health Services Research Unit, University of Aberdeen
Steve Woolgar, Senior Research Fellow in Marketing, Saïd Business School, Professor of Science and Technology Studies, Linköping University, Sweden
Sue Ziebland, Professor of Medical Sociology and Director of the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Veronika Williams, Research Fellow in digital health, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Anne-Marie Boylan, NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Research fellow, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Farzana Dudhwala, Postdoctoral Researcher in digital health, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Joanna Fleming, Research Fellow, Unit of Academic Primary Care, Warwick Medical School
Susan Kirkpatrick, former Senior Qualitative Researcher, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Michelle van Velthoven, Sir David Cooksey Fellow in Healthcare Translation, Department of Paediatrics, University of Oxford
Angela Martin, Health Experiences Research Group, Nuffield Department of Primary Care Health Science
Patients, carers and public reference group
Douglas Findlay, Lay Chair of the Patients, Carers and Public Reference Group
Study steering committee
With thanks to the external members of the Study Steering Committee Prof Aileen Clarke (University of Warwick), Bob Gann (NHS Digital), Felix Greaves (Public Health England).
We would also like to thank the participants who took part in the research, the four participating NHS trusts and the staff from the four participating case study sites.
Online resource production
This resource was developed by Eleanor Stanley (Stories for Health), with Joanna Goodrich and Bev Fitzsimons (Point of Care Foundation). The content of this resource was written by Emma Hyde and John Powell (Health Experiences Research Group). Video interviews were recorded by Susan Kirkpatrick and Ruth Sanders (Health Experiences Research Group). Ruth Sanders selected and edited the videos for this resource. Thanks to members of the Patients Carers and Public Reference Group who commented on the resource.
The resource draws on the findings from the INQUIRE monograph (a detailed written study), and is illustrated with quotes from self-completed questionnaires with 1,001 UK doctors, 749 nurses and midwives, a focus group with five allied health professionals and in-depth ethnographic case studies in four NHS trusts. The resource also includes quotes and video clips from 37 qualitative interviews with patients and their family members.
Video clips are also included with expert representatives from the INQUIRE Project Symposium.
With thanks to the Point of Care Foundation for hosting the resource on its website.