Evidence and Resources Library

• 12 November 2013 Film

  Dr Kieran Sweeney talks about his experiences as a cancer patient

  Dr Kieran Sweeny talks about his experience of receiving a terminal diagnosis of cancer. Kieran notices that the staff appear hesitant to tell him directly that he is going to die, only finding out the truth when reading his discharge letter at home. Kieran reflects on possible reasons behind the care that he received.

• 01 November 2013 Case study

  Patient and carer empowerment: a children’s asthma improvement project

  This case study explores how the University Hospital of North Staffordshire used the patient and family centred care (PFCC) methodology to improve patient, family, and staff experience of asthma care and to address barriers to quality care.

• 01 November 2013 Case study

  Best care for our mothers and fathers

  This case study explores how the Royal Gwent Hospital in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the quality of care for elderly patients admitted with a broken hip.

• 01 November 2013 Case study

  Duchenne Muscular Dystrophy (DMD)

  This case study explores how the Multidisciplinary Outpatient Review Clinic for Boys with DMD at Great Ormond Street Hospital for Children NHS Foundation Trust used the patient and family centred care (PFCC) methodology to improve patient experiences of the 3-4 hour long visit to the clinic.

• 01 November 2013 Case study

  Diabetes foot care project

  This case study explores how Aneurin Bevan University Health Board in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the care experience for patients who were admitted with diabetic foot problems.

• 01 November 2013 Case study

  Pediatric asthma: improving patient and staff experience

  This case study explores how a pediatric team at Walsall Healthcare NHS Trust, West Midlands, England, used the patient and family centred care (PFCC) methodology to improve patient and staff experience of asthma treatment.

• 01 November 2013 Case study

  Improving the experience of patients with COPD

  This case study explores a patient and family centred care (PFCC) project undertaken by a team from Hywel Dda Health Board in Pembrokeshire, Wales in an attempt to to improve the discharge experience for patients with COPD.

• 01 November 2013 Case study

  The conversation project

  This case study explores The Conversation Project, a patient and family centred care (PFCC) project in end-of-life care undertaken by a multidisciplinary team from Royal United Hospitals Bath Foundation Trust.

• Cathal Doyle, Laura Lennox, Derek Bell BMJ Open 03 January 2013 Evidence

  A systematic review of evidence on the links between patient experience and clinical safety and effectiveness

  This study shows that good experiences for patients are associated with better clinical outcomes and safer patient care.

• Jocelyn Cornwell and Joanna Goodrich 03 December 2008 Evidence

  Seeing the person in the patient

  The report introduces current debates and dilemmas in relation to patients’ experience of care in hospital, presents our view of the factors that shape that experience, and assesses the evidence to support various interventions that are designed to tackle the problems.