Evidence and Resources Library

• Neil Springham and Glenn Robert BMJ Quality Improvement 12 November 2015 Evidence

  Experience based co-design reduces formal complaints on an acute mental health ward

  This study describes how experience based co-design (EBCD) was adapted for safe use within a mental health setting, resulting in formal service user and family complaints being eradicated for a period of 23 months.

• Bev Fitzsimons 01 November 2015 Case study

  Fundamentals of measurement for improvement

  This resource identifies different types of measurement (measurement for accountability vs measurement for improvement), what data to use, and what makes for a successful measurement strategy.

• Jo Mackintosh 01 November 2015 Case study

  Understanding and improving the patient experience

  This resource explores the challenges of measuring patient experience, how data should be collected and presented, what to measure, and how to make sense of qualitative data. It provides various infographics to relate its evidence and findings.

• Jocelyn Cornwell Patient Experience Journal 01 April 2015 Evidence

  Reframing the work on patient experience improvement

  This article that patient experience needs to be viewed as a primary goal in healthcare alongside other aspects such as quality and safety, rather than as an isolated aim.

• Glenn Robert et al BMJ 10 February 2015 Evidence

  Patients and staff as codesigners of healthcare services

  This article describes how experience-based co-design can be used to ensure that healthcare organisations realise the full potential of patients—the biggest resource they have for improving the quality of care.

• Bev Fitzsimons 04 June 2014 Evidence

  PFCC programme report

  This report describes the goals of the programme which ran with fifteen teams in 11 NHS organisations across England and Wales from January 2012 to November 2013.

• 12 November 2013 Film

  Dr Kieran Sweeney talks about his experiences as a cancer patient

  Dr Kieran Sweeny talks about his experience of receiving a terminal diagnosis of cancer. Kieran notices that the staff appear hesitant to tell him directly that he is going to die, only finding out the truth when reading his discharge letter at home. Kieran reflects on possible reasons behind the care that he received.

• 01 November 2013 Case study

  Best care for our mothers and fathers

  This case study explores how the Royal Gwent Hospital in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the quality of care for elderly patients admitted with a broken hip.

• 01 November 2013 Case study

  Duchenne Muscular Dystrophy (DMD)

  This case study explores how the Multidisciplinary Outpatient Review Clinic for Boys with DMD at Great Ormond Street Hospital for Children NHS Foundation Trust used the patient and family centred care (PFCC) methodology to improve patient experiences of the 3-4 hour long visit to the clinic.

• Cathal Doyle, Laura Lennox, Derek Bell BMJ Open 03 January 2013 Evidence

  A systematic review of evidence on the links between patient experience and clinical safety and effectiveness

  This study shows that good experiences for patients are associated with better clinical outcomes and safer patient care.