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Duchenne Muscular Dystrophy (DMD)

01 November 2013 Case study

Topics and programmes


The multidisciplinary team at Great Ormond Street Hospital for Children aimed to improve the experiences of boys and their families during the 3-4 hour long multidisciplinary outpatient clinic visit.

Utilising the PFCC methodology, the team shadowed patients, developed driver diagrams, undertook focus groups, surveys and interviews. From the baseline evidence the team gathered they implemented a variety of changes, including establishing a system in which families were called prior to appointments to confirm attendance, a text system to remind families about appointments and ensuring a more realistic appointment system.

Further interventions are highlighted in the image below, and these led to many success.

 

 

 

 

 

 

For example, within a year, 91% of families reported receiving a care plan on arrival, compared to 25% of families previously, and 92% of families reported waiting less than 30 minutes for an appointment, as opposed to 58% prior to the project. Furthermore, 90% of families noted feeling that their child’s concerns were listened to, and that their management plan was explained in a way that families understood.