Sweeney resources
Through our work we have developed a range of resources to support people applying Sweeney methodologies, which are free to access here. Get in touch if you would like to find out more about how we can support you or your team. You can also join the Sweeney Community to receive updates about new resources and work in this area.
- 11 March 2008
Building the business case for patient-centered care
This article demonstrates that patient-centered care has the potential to produce safer and more cost-effective care.
- 03 December 2008 Evidence
Seeing the person in the patient
The report introduces current debates and dilemmas in relation to patients’ experience of care in hospital, presents our view of the factors that shape that experience, and assesses the evidence to support various interventions that are designed to tackle the problems.
- 03 January 2013 Evidence
A systematic review of evidence on the links between patient experience and clinical safety and effectiveness
This study shows that good experiences for patients are associated with better clinical outcomes and safer patient care.
- 15 January 2014 Evidence
Staff care: How to engage staff in the NHS and why it matters
Our inaugural report argues that caring about people working in healthcare is the key to developing a caring, compassionate health service. Moreover, it argues that supporting staff should be a central driver in improving patient care, productivity and financial performance.
- 04 June 2014 Evidence
PFCC programme report
This report describes the goals of the programme which ran with fifteen teams in 11 NHS organisations across England and Wales from January 2012 to November 2013.
- 10 February 2015 Evidence
Patients and staff as codesigners of healthcare services
This article describes how experience-based co-design can be used to ensure that healthcare organisations realise the full potential of patients—the biggest resource they have for improving the quality of care.
- 01 April 2015 Evidence
Reframing the work on patient experience improvement
This article that patient experience needs to be viewed as a primary goal in healthcare alongside other aspects such as quality and safety, rather than as an isolated aim.
- 12 November 2015 Evidence
Experience based co-design reduces formal complaints on an acute mental health ward
This study describes how experience based co-design (EBCD) was adapted for safe use within a mental health setting, resulting in formal service user and family complaints being eradicated for a period of 23 months.
- 10 May 2016 Paper
What is the potential of patient shadowing as a patient-centred method?
This paper argues that patient shadowing is an effective method for delivering patient-centred care.
- 05 August 2016 Paper
Improving childhood nutrition and wellness in South Africa
To supplement an ongoing local quality improvement (QI) intervention addressing poor nutritional outcomes in children, experience-based co-design (EBCD) was used to enhance previously low levels of mother, carer and staff engagement.
- 24 May 2018 Report
Staff and patients. Improving networked care
This report describes the progress of the Moorfields Eye Hospital vanguard, which used tools from the Point of Care Foundation to embed patient and staff co-design into service design across the Moorfields network.
- 15 August 2018 Report
An Options Appraisal for obtaining feedback on the experiences of children and young people with cancer
A report on how best to obtain feedback on the experience of children and young people with cancer
- 07 March 2019 Toolkit
Using online patient feedback to improve care
A guide supporting clinical, patient experience and quality teams to understand how to use online patient feedback to improve quality in healthcare.
- 23 October 2019 Evidence
Impact report 2019
How the Point of Care Foundation’s programmes support healthcare staff and patients
- 02 December 2019 Film
A brief introduction to the Point of Care Foundation
Jocelyn Cornwell gives a short introduction to the Point of Care Foundation.
- 16 December 2019
The emotional labour of quality improvement work in end of life care
The emotional labour of quality improvement work in end of life care: a qualitative study of Patient and Family Centred Care (PFCC) in England.
- 14 September 2020 Evidence
Quality Time: Using EBCD to capture staff experience
In the Quality Time study, researchers investigated whether using experience-based co-design (EBCD) is an effective way to capture staff experience as a way to improve service design.
- 14 September 2020 Evidence
Shadowing patients at the end of life
The aim of this study was to explore the acceptability of patient shadowing for healthcare staff, the impact of the experience and subsequent motivations to make improvements.
- 05 April 2018 Paper
The Journal of Health Design (JHD) – Vol 3, No 1 (2018)
Patients as co-designers to improve the quality of care - Vol 3, No 1 (2018)
- 17 October 2018 Film
Reflections on ‘Living Well to the Very End’ programme
Seven short interviews with participants on the Point of Care Foundation's 'Living Well to the Very End' care quality improvement programme.
- 15 May 2018 Toolkit
Using patient experience for improvement
A guide supporting clinical, patient experience and quality teams to draw on patient experience data to improve quality in healthcare
- 01 November 2013 Case study
Best care for our mothers and fathers
This case study explores how the Royal Gwent Hospital in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the quality of care for elderly patients admitted with a broken hip.
- 01 November 2013 Case study
Diabetes foot care project
This case study explores how Aneurin Bevan University Health Board in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the care experience for patients who were admitted with diabetic foot problems.
- 12 November 2013 Film
Dr Kieran Sweeney talks about his experiences as a cancer patient
Dr Kieran Sweeny talks about his experience of receiving a terminal diagnosis of cancer. Kieran notices that the staff appear hesitant to tell him directly that he is going to die, only finding out the truth when reading his discharge letter at home. Kieran reflects on possible reasons behind the care that he received.
- 01 November 2013 Case study
Duchenne Muscular Dystrophy (DMD)
This case study explores how the Multidisciplinary Outpatient Review Clinic for Boys with DMD at Great Ormond Street Hospital for Children NHS Foundation Trust used the patient and family centred care (PFCC) methodology to improve patient experiences of the 3-4 hour long visit to the clinic.
- 04 April 2016 Point of Care publication
EBCD: Experience-based co-design toolkit
The toolkit includes short videos from staff and patients involved in experience-based co-design (EBCD) projects to help bring to life the successes and intense rewards of running this type of improvement project.
- 15 March 2017 Presentation
Engaging medics in patient and public involvement
This presentation from the HOPE network meeting in March 2017 gives practical tips and examples of how to engage medical colleagues in work to improve patient experience.
- 01 November 2015 Case study
Fundamentals of measurement for improvement
This resource identifies different types of measurement (measurement for accountability vs measurement for improvement), what data to use, and what makes for a successful measurement strategy.
- 20 October 2017 Film
How did you adapt the approach to people with learning disabilities?
In this video, Jane Parr talks about how Leicestershire Partnership NHS Trust adapted the Experience Based Co-Design methodology to be used within a learning disabilities care setting.
- 20 October 2017 Film
How did you approach the co-design joint event?
In this video, Jane Parr describes how she approached the co-design joint event for her Experience Based Co-Design project at Leicestershire Partnership NHS Trust.
- 20 October 2017 Film
How did you get the project off the ground?
In this video, Jane Parr talks Leicestershire Partnership NHS Trust got their Experience Based Co-Design project, 'My Care, My Voice', off the ground.
- 20 October 2017 Film
How did you organise your events?
In this video, Jane Parr shares how she organised her staff and patient events for her Experience Based Co-Design project at Leicestershire Partnership NHS Trust.
- 01 November 2013 Case study
Improving the experience of patients with COPD
This case study explores a patient and family centred care (PFCC) project undertaken by a team from Hywel Dda Health Board in Pembrokeshire, Wales in an attempt to to improve the discharge experience for patients with COPD.
- 01 December 2016 Film
Involving people with learning disabilities – Leicestershire Partnership NHS Trust
A Learning Disabilities service in Leicester found that EBCD was the ideal way to bring together users, families and staff to share experiences of care and design and implement change.
- 17 January 2018 Point of Care publication
Our impact: The Sweeney Programme
This report shows the difference our patient-focused quality improvement work makes to healthcare staff, patients and organisations
- 01 March 2017 Presentation
Measuring for improvement
These slides explore why it is important to focus on patients' and families' experiences, how to engage patients and staff with improvement, and how feedback can be used to improve outcomes. They look specifically at the achievements of Northumbria Healthcare NHS Foundation Trust.
- 01 November 2013 Case study
Patient and carer empowerment: a children’s asthma improvement project
This case study explores how the University Hospital of North Staffordshire used the patient and family centred care (PFCC) methodology to improve patient, family, and staff experience of asthma care and to address barriers to quality care.
- 01 November 2013 Case study
Pediatric asthma: improving patient and staff experience
This case study explores how a pediatric team at Walsall Healthcare NHS Trust, West Midlands, England, used the patient and family centred care (PFCC) methodology to improve patient and staff experience of asthma treatment.
- 04 April 2016 Point of Care publication
PFCC: Patient and Family-Centred Care toolkit
This toolkit is a step-by-step guide to improving processes of care and staff–patient interactions. It offers a simple way for organisations to show their commitment to patients’ experience while also motivating the staff who deliver that care.
- 31 May 2017
Driver diagrams
A driver diagram is a conceptual model that helps teams to identify an aim they want to achieve and then to align the relevant system components in order to support its achievement.
- 01 November 2013 Case study
The conversation project
This case study explores The Conversation Project, a patient and family centred care (PFCC) project in end-of-life care undertaken by a multidisciplinary team from Royal United Hospitals Bath Foundation Trust.
- 20 October 2017 Film
What made Experience Based Co-Design different from other approaches?
In this video, Jane Parr, who led an Experience Based Co-Design at Leicestershire Partnership NHS Trust, shares why she thinks Experience Based Co-Design (EBCD) is different from other approaches.
- 01 November 2015 Case study
Understanding and improving the patient experience
This resource explores the challenges of measuring patient experience, how data should be collected and presented, what to measure, and how to make sense of qualitative data. It provides various infographics to relate its evidence and findings.
- 20 October 2017 Film
What changes have you made as a result of the project?
In this video, Jane Parr talks about the changes made at Leicestershire Partnership NHS Trust as a result of their learning disabilities Experience Based Co-Design project, 'My Care, My Voice'.
- 20 October 2017 Film
What did you do to engage staff?
In this video, Jane Parr shares how Leicestershire Partnership NHS Trust got staff engaged in their Experience Based Co-Design project, 'My Care, My Voice'.
- 20 October 2017 Film
What made you decide to attend The Point of Care Foundation’s EBCD training?
In this video, Jane Parr explains what drew her to The Point of Care Foundation's unique co-design training - 'Experience Based Co-Design'.