Sweeney resources

What is the potential of patient shadowing as a patient-centred method?

This paper argues that patient shadowing is an effective method for delivering patient-centred care.

Testing accelerated experience-based co-design

A qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement

Patients and staff as codesigners of healthcare services

This article describes how experience-based co-design can be used to ensure that healthcare organisations realise the full potential of patients—the biggest resource they have for improving the quality of care.

Reframing the work on patient experience improvement

This article that patient experience needs to be viewed as a primary goal in healthcare alongside other aspects such as quality and safety, rather than as an isolated aim.

Experience based co-design reduces formal complaints on an acute mental health ward

This study describes how experience based co-design (EBCD) was adapted for safe use within a mental health setting, resulting in formal service user and family complaints being eradicated for a period of 23 months.

An Options Appraisal for obtaining feedback on the experiences of children and young people with cancer

A report on how best to obtain feedback on the experience of children and young people with cancer

PFCC programme report

This report describes the goals of the programme which ran with fifteen teams in 11 NHS organisations across England and Wales from January 2012 to November 2013.

Work and wellbeing in the NHS: why staff health matters to patient care

This report by the Royal College of Physicians (RCP) sets out why it is in the best interests of both patients and NHS organisations for the health, wellbeing and engagement of the NHS workforce to be prioritised.

Staff care: How to engage staff in the NHS and why it matters

Our inaugural report argues that caring about people working in healthcare is the key to developing a caring, compassionate health service. Moreover, it argues that supporting staff should be a central driver in improving patient care, productivity and financial performance.

Staff and patients. Improving networked care

This report describes the progress of the Moorfields Eye Hospital vanguard, which used tools from the Point of Care Foundation to embed patient and staff co-design into service design across the Moorfields network.

A systematic review of evidence on the links between patient experience and clinical safety and effectiveness

This study shows that good experiences for patients are associated with better clinical outcomes and safer patient care.

Enhancing experience of healthcare: a summary of the evidence

This report, compiled from 110 systematic reports, outlines a number of proven approaches to improve patient practice.

Improving childhood nutrition and wellness in South Africa

To supplement an ongoing local quality improvement (QI) intervention addressing poor nutritional outcomes in children, experience-based co-design (EBCD) was used to enhance previously low levels of mother, carer and staff engagement.

Building the business case for patient-centered care

This article demonstrates that patient-centered care has the potential to produce safer and more cost-effective care.

Review into the quality of care and treatment provided by 14 hospital trusts in England: overview report

Seeing the person in the patient

The report introduces current debates and dilemmas in relation to patients’ experience of care in hospital, presents our view of the factors that shape that experience, and assesses the evidence to support various interventions that are designed to tackle the problems.

Impact report 2019

How the Point of Care Foundation’s programmes support healthcare staff and patients

Using online patient feedback to improve care

A guide supporting clinical, patient experience and quality teams to understand how to use online patient feedback to improve quality in healthcare.

A brief introduction to the Point of Care Foundation

Jocelyn Cornwell gives a short introduction to the Point of Care Foundation.

The emotional labour of quality improvement work in end of life care

The emotional labour of quality improvement work in end of life care: a qualitative study of Patient and Family Centred Care (PFCC) in England.

Reflections on ‘Living Well to the Very End’ programme

Seven short interviews with participants on the Point of Care Foundation's 'Living Well to the Very End' care quality improvement programme.

The Journal of Health Design (JHD) – Vol 3, No 1 (2018)

Patients as co-designers to improve the quality of care - Vol 3, No 1 (2018)

Using patient experience for improvement

A guide supporting clinical, patient experience and quality teams to draw on patient experience data to improve quality in healthcare

Best care for our mothers and fathers

This case study explores how the Royal Gwent Hospital in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the quality of care for elderly patients admitted with a broken hip.

Changing experiences of paediatric services in rural Africa

This case study explores how a specialist malnourishment and HIV clinic in north western South Africa used the experience based co-design (EBCD) method to make improvements to the service for both the mother/carer and child.

Diabetes foot care project

This case study explores how Aneurin Bevan University Health Board in Newport, Wales used the patient and family centred care (PFCC) methodology to improve the care experience for patients who were admitted with diabetic foot problems.

Dr Kieran Sweeney talks about his experiences as a cancer patient

Dr Kieran Sweeny talks about his experience of receiving a terminal diagnosis of cancer. Kieran notices that the staff appear hesitant to tell him directly that he is going to die, only finding out the truth when reading his discharge letter at home. Kieran reflects on possible reasons behind the care that he received.

Duchenne Muscular Dystrophy (DMD)

This case study explores how the Multidisciplinary Outpatient Review Clinic for Boys with DMD at Great Ormond Street Hospital for Children NHS Foundation Trust used the patient and family centred care (PFCC) methodology to improve patient experiences of the 3-4 hour long visit to the clinic.

EBCD: Experience-based co-design toolkit

The toolkit includes short videos from staff and patients involved in experience-based co-design (EBCD) projects to help bring to life the successes and intense rewards of running this type of improvement project.

Engaging medics in patient and public involvement

This presentation from the HOPE network meeting in March 2017 gives practical tips and examples of how to engage medical colleagues in work to improve patient experience.

Five tips on how the NHS can engage patients and the public

In this Guardian opinion piece, Ceinwen Giles gives five tips on engaging patients and the public in the NHS, paying particular attention to how to involve the "unusual suspects".

Fundamentals of measurement for improvement

This resource identifies different types of measurement (measurement for accountability vs measurement for improvement), what data to use, and what makes for a successful measurement strategy.

How did you adapt the approach to people with learning disabilities?

In this video, Jane Parr talks about how Leicestershire Partnership NHS Trust adapted the Experience Based Co-Design methodology to be used within a learning disabilities care setting.

How did you approach the co-design joint event?

In this video, Jane Parr describes how she approached the co-design joint event for her Experience Based Co-Design project at Leicestershire Partnership NHS Trust.

How did you get the project off the ground?

In this video, Jane Parr talks Leicestershire Partnership NHS Trust got their Experience Based Co-Design project, 'My Care, My Voice', off the ground.

How did you organise your events?

In this video, Jane Parr shares how she organised her staff and patient events for her Experience Based Co-Design project at Leicestershire Partnership NHS Trust.

Improving the experience of patients with COPD

This case study explores a patient and family centred care (PFCC) project undertaken by a team from Hywel Dda Health Board in Pembrokeshire, Wales in an attempt to to improve the discharge experience for patients with COPD.

Involving people with learning disabilities – Leicestershire Partnership NHS Trust

A Learning Disabilities service in Leicester found that EBCD was the ideal way to bring together users, families and staff to share experiences of care and design and implement change.

Our impact: The Sweeney Programme

This report shows the difference our patient-focused quality improvement work makes to healthcare staff, patients and organisations

Measuring for improvement

These slides explore why it is important to focus on patients' and families' experiences, how to engage patients and staff with improvement, and how feedback can be used to improve outcomes. They look specifically at the achievements of Northumbria Healthcare NHS Foundation Trust.

Patient and carer empowerment: a children’s asthma improvement project

This case study explores how the University Hospital of North Staffordshire used the patient and family centred care (PFCC) methodology to improve patient, family, and staff experience of asthma care and to address barriers to quality care.

Pediatric asthma: improving patient and staff experience

This case study explores how a pediatric team at Walsall Healthcare NHS Trust, West Midlands, England, used the patient and family centred care (PFCC) methodology to improve patient and staff experience of asthma treatment.

PFCC: Patient and Family-Centred Care toolkit

This toolkit is a step-by-step guide to improving processes of care and staff–patient interactions. It offers a simple way for organisations to show their commitment to patients’ experience while also motivating the staff who deliver that care.

Driver diagrams

A driver diagram is a conceptual model that helps teams to identify an aim they want to achieve and then to align the relevant system components in order to support its achievement.

Tackling patient and staff wellbeing in A&E (Royal Berkshire Hospital NHS Foundation Trust)

This case study explores how Royal Berkshire Hospital NHS Foundation Trust used Experience Based Co-Design (EBCD) to improve staff wellbeing and patient experience in the A&E department.

The conversation project

This case study explores The Conversation Project, a patient and family centred care (PFCC) project in end-of-life care undertaken by a multidisciplinary team from Royal United Hospitals Bath Foundation Trust.

What made Experience Based Co-Design different from other approaches?

In this video, Jane Parr, who led an Experience Based Co-Design at Leicestershire Partnership NHS Trust, shares why she thinks Experience Based Co-Design (EBCD) is different from other approaches.

Understanding and improving the patient experience

This resource explores the challenges of measuring patient experience, how data should be collected and presented, what to measure, and how to make sense of qualitative data. It provides various infographics to relate its evidence and findings.

What changes have you made as a result of the project?

In this video, Jane Parr talks about the changes made at Leicestershire Partnership NHS Trust as a result of their learning disabilities Experience Based Co-Design project, 'My Care, My Voice'.

What did you do to engage staff?

In this video, Jane Parr shares how Leicestershire Partnership NHS Trust got staff engaged in their Experience Based Co-Design project, 'My Care, My Voice'.

What made you decide to attend The Point of Care Foundation’s EBCD training?

In this video, Jane Parr explains what drew her to The Point of Care Foundation's unique co-design training - 'Experience Based Co-Design'.