Skip to content

‘Living well to the very end’ programme – celebration event

23 February 2017

Topics and programmes

We are now one year into our ambitious ‘living well to the very end’ programme which aims to improve patients’ and families’ experiences in end-of-life care.


At the event, our teams will present some of their wonderful projects. In addition a range of experts in end-of-life care will discuss the ongoing work to deliver the national strategy and others will share the latest evidence and best practice.

We are also excited to announce that Lesley Goodburn will be presenting her moving play, Homeward Bound. Telling the true story of Lesley and her husband Seth, who died of pancreatic cancer at the age of 49, the play provides a very humanising perspective on end-of-life care, drawing on the letters Lesley wrote before and after her husband’s death. The play will be followed by a discussion facilitated by Lesley. You can read a recent discussion of the play in the Guardian here.

We are also pleased to welcome the previous PFCC team from the Royal United Hospitals Bath, who will share their experience of PFCC in end-of-life care, as well as many other initiatives for staff support across the Trust.

The event will also provide the opportunity for delegates to learn about using the PFCC methodology in their own settings and to register their interest for the next cohort of the programme, which will launch in 2017.

Given the importance of patient-centred care at the end-of-life, and the impact on families when end-of-life care is truly patient-centred, attending this event, you will:

  • Understand the potential of the patient and family centred care (PFCC) methodology to improve the experiences of patients at the end of life and their families. You will hear from teams that have successfully applied the method in their own practice.
  • Learn how the PFCC method can be successfully applied to end-of-life care in generalist settings. You will learn the conditions for success, possible challenges and how these can be overcome.
  • Understand the next steps needed to apply patient-centred quality improvement methods to end-of-life care in your own setting. You will be able to register interest for the 2017 cohort of the programme.